You see this man was allergic to the sun. He could not go outdoors and enjoy life with his family. He was so affected by the sun that he had no nose, lips, eyelids or ears. He litterally looked like a skeleton with a thin layer of skin. On the show his family talked about his disorder, their struggles as a family and the love they had for one another.
This man willingly came to the show to tell his story. He didn't care about what other people thought. He just knew how much he loved his family and he wanted to shed some light on his disease with the viewers. I cannot remember his name, however the image of this man taking a family portrait with his family that hangs proudly in their home is burned forever in my minds eye.
I remember vowing to myself back then to always remember him and his family when I felt that things just were too tough too handle. I am forever grateful for the gift he gave me that day.
I recently had written to Sally Jessy, to find out of there is any way to find out who this man was. Please say for me that I will find him. I want to personally thank him and his family for his selfless gift of being.
May you find your path to greatness...
Irene
